Yesterday I was sitting in a doctor’s office signing my life away, again. I had started an experimental study for Crohn’s Disease, but I had to be taken off due to an infection. So yesterday we went through the process again and I had to sign papers all over again.
The specialist I see has to ask questions about where I am at and how I feel. Obviously if I’m feeling great and have no symptoms, they want someone else for the study. She asked about mouth ulcers, known to happen in Crohn’s patients and very common to me. I admitted I had a few recently. Then came the exam.
She listened with her stethoscope, examined my eyes and finally looked inside my mouth. “Oh, I can see where you had one on your tongue and it is healing.” After the exam was over and we were on our way to get some healthy lunch, by the way Jason’s Deli offers a variety of healthy options, Karl apologized, even though it wasn’t his fault.
“I didn’t know you were struggling with mouth ulcers. I’m sorry I keep trying to kiss you right now.” What was wrong with my voice? Why didn’t I just admit that I was in pain in my mouth and just didn’t care to be kissed right then? It wasn’t his fault, it was mine for not speaking up. Even though we’ve been married for more than 20 years, sometimes I still don’t want to admit when the Crohn’s Disease has done one of its things to me and I just don’t want to be kissed right now. It’s a part of my life. I need to quit pretending that it doesn’t happen and just be open and honest with the one man who won’t laugh or shame me for what I’m going through. Lesson learned, I hope.