Like it or not, once you start messing around with all that amazing stuff inside of your skull, you are going to have some consequences. With our daughter, we are glad the lesions in her brain are no longer growing, that it is the one time ADEM episode, but the fact of the matter is there are still after effects of the lesions in her brain.
Greta is one of the many sufferers of a disease or disorder that no one can easily see on the outside. There are many issues, some chronic, some acute, but all leave a person feeling isolated to some extent. They look “normal” to most, but those who know them best know the more of their daily struggles.
Most kids that suffer from brain injuries/lesions, try so hard to hold it together at school. They let it all out at home, full force. Lucky us. At least Greta gets to experience a mostly normal day at school with friends. At home, however, when her will and our wills clash – it can be a nasty battle. The last one left Karl and I on the wounded list for hours. Greta recovered in a matter of minutes – cheerful as ever.
After debriefing over the latest explosion of anger and emotions from our daughter, we discovered something. She has a short circuit. Perseveration – latching on to something and not letting go – is one of her issues. If you try to change Greta’s mind on something she is latched on to – let the battle begin! What we learned is we try to go to step 1 of reasoning out a solution agreeable to all. Greta immediately launches a nuclear strike and takes no prisoners. She no longer has the ability to follow reasonable conflict resolution patterns in areas where she is experiencing perseveration.
Our task now: figure out how to help Greta develop a new circuit so the battle doesn’t start off immediately with a missile crisis – will she or won’t she? On this journey of ADEM effects, we learn more and more about the amazing brain and how our bodies cope. My prayer is that we learn enough to make a difference in Greta’s post ADEM life and the lives of others that suffer due to brain injuries and illnesses.