Category Archives: Health & Wellness

Why I Spend More for Less Ice Cream

I’ve been accused of being from out of town. After all, who else would have an app for all the local grocery store chains and be able to shop savvy in the middle of the only incorporated town in all of Marion County, Texas? Yes, I’m that kind of person. I like to save when I can.

Am I an extreme coupon clipper? No! I did research on that and found out that part of the way they get their coupons is by getting online, finding coupons that are being used for a particular market for introduction and evaluation and changing their zip code to match so they can download that coupon. In other words: that $2 off coupon is only good in the Northeast where they are doing some market research, but if you change you zip code to a northeast zip code, you can get one of the coupons. My ethics won’t allow me to do such things. So, I save where I can and budget and do my best. I play the balancing game between how much my time is worth, how much gas would be spent going to different stores compared to the amount of savings I would get. It’s what you have to do when you’re on a budget!

So when in the world do I spend more for less ice cream? The answer is simple. I love my daughter.

Greta is going through that puberty phase where some girls get rail thin and others get pudgy and round. She’s going for pudgy and round. She’s also emotional, thanks to ADEM, so she gets attached to foods she loves and is sometimes a stress eater. Let’s see, her brother left for college and we are relocating to Mississippi. Nope, no stress in this household. On top of it all, Greta is dealing with habits and appetite binges she developed when on a huge dose of steroids to save her life during ADEM. She’s got a lot of things going against her right now. She needs all the help she can get. So I buy more expensive ice cream.

I’m not talking about buying the generic store brand versus those that claim to be the best ice cream in the country. I’m talking about spending more to buy those prepackaged ice cream cups. Greta loves ice cream! It’s a love language for her and it helps to calm her down in the middle of one of her ADEM mood swings. But I can get much more ice cream for my money if I just buy a half gallon of it and everyone scoops their own. That’s the problem. Greta scoops out way too much. Actually, we all do!

So I’ve come to the point where spending more money, to get the smaller and already packaged cups of ice cream is the best thing I can do to help Greta learn portion sizes with the treat she loves so much and gives her so much comfort. If you’ve ever been through a life threatening situation that leaves you emotionally scarred, you’ll understand how important it is to have a comfort item in your life. So yes, that’s why this budgeting and saving mom spends more for less ice cream. I look at the heart of the matter – a little girl going through so much at one time and I decided she’s more than worth it!

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Filed under ADEM, Family, Parenting

What Tools Should You Have in Your Toolbox?

If you hang around neuro-psychologists long enough, you just might pick up a couple of their phrases. Going through the evaluations, various testings including follow-up MRI’s and so forth with Greta’s Acute Disseminated Encephalomyelitis (ADEM), we’ve spent some time with a great neuro-psychologist. One of her phrases that we love -Tools for your Toolbox!

Basically, this doctor, who is a favorite among all the kids and parents because she is just so awesome, says her goal is to make sure Greta has enough tools in her toolbox to handle dealing with ADEM in day to day life. Now nearly three years after that terrifying ordeal of seeing my little girl hospitalized and hooked up to all kinds of things, I realize that tools in the toolbox can apply to any of us. I’ve also seen that we’re a lot happier when we embrace this.

I’m getting ready to send my firstborn off to college. He has his own issues that he deals with, like being an intense introvert and being addicted to his routines. Seeing him being forced by circumstances to change his routine is like watching ants that have lost the line. So yeah, I’m a little nervous for him, but I’ve taken on Dr. Harder’s mantra and I’m doing everything I can to make sure that Michael has the tools he needs in his toolbox to deal with life as a college student hundreds of miles from home.

So what tools should you have in your toolbox? That’s easy, the ones that help you cope and deal with life – in addition they should be legal, moral and ethical. That usually helps. While there will be similarities, there will also be tools that will be different for each person. Greta, being very literal now and decreased math skills due to ADEM, needs tools to help her remember to ask people to help her when she doesn’t understand something. She needs to tool of asking others to slow down and help her until she gets that joke, because she’s so literal.

Michael, the extreme introvert, knows he would rather do just about anything before talking on the phone to anyone. So a tool in his toolbox is going to be a good friend willing to make a phone call when he can’t.

What tools should be in your toolbox? Find those things that help you cope with life and deal with the day to day stresses that living on planet Earth serves up on a regular basis. The amazing thing is, you’ll usually find tools for your toolbox in your family, church, community and friends.

 

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Filed under ADEM, Community, Family, Parenting

Jumping Ahead

When you are used to being active and involved in everything, being sidelined is almost a fate worse than death. So you can imagine my anticipation and eagerness after a corrective surgery to get back on my feet and get back in the game. Oops, a little too soon and a little too fast.

The good news is that the evil adhesion mass has been removed and once I fully recover from the surgery, look out world here I come! I’ve longed to do so much that my hunger and thirst for it drove me harder, faster, more – and just a little bit of overdoing it.

There are things I’ve promised myself – no more sitting around and doing nothing! Getting out and doing things again and saying yes to more invitations. But I’ve come to realize that being sidelined has an impact on more than your physical ability. It creates new habits, new routines, new ways of doing things. I’ve already faced a couple of situations where activity was available, but the habit of staying home and drawing into myself reared its ugly head and sometimes won out.

The biggest battle I face now may no longer be physical pain, but the kind of life I accepted while I was in so much pain and whether or not to continue coasting along. God give me strength to no longer find coasting along as acceptable!

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Filed under Community, Healthy Lifestyle

Saving Supper

For the past 13 months, pain has been a way of life for me. During that same time period, picking up the slack and taking care of me has been the way of life for my husband. But it’s nothing new. I picked a winner.

Karl and I attended a small Christian college in central Texas where the cafeteria hours were unmovable – even if it conflicted with a class. Seeking a bachelor of arts degree, I had to take foreign language and I chose French. It just so happened that French class got out five minutes before the cafeteria closed – and it was on the opposite end of the campus. Enter the hero – my boyfriend who became my husband.

Karl would eat supper then go back through line and get a tray for me, he arranged it with one of the cafeteria workers he had befriended. The entrance door would be locked, but I could knock on the exit door and Karl would let me in and I got to eat supper. For someone with digestive problems caused by Crohn’s Disease who has to eat three regular meals a day – no snacking – this was a lifesaver.

My husband continues to be my hero. I am grateful.

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Filed under Crohn's Disease, Family, Marriage

Redemption Chocolate

This weekend I came back from the marriage seminar that Karl and I presented, to find an absolute mess in the kitchen and two boys still in pajamas. Lovely. The girl was nowhere in sight. She went to hang out with friends on the block instead of hanging out with her brothers that were doing nothing but living in pajamas all day. Can’t blame her for that one.

Last night, I was presented with a box of my favorite chocolates by the oldest. Michael made a big deal of it. I told him he had redeemed himself. The funny thing – he got the chocolates to say that he knows I’m going through a lot physically right now and he can see it’s really rough on me – yet I still do all the mom stuff. He smiled sheepishly that it wasn’t apology for the mess in the kitchen.

To me, it doesn’t really matter. Just the thoughtfulness of getting the chocolates for me. How often does a teenage boy go out of his way to buy expensive chocolates for his mom – when it’s not Valentine’s Day yet or Christmas or birthday or anything like that? I consider myself blessed. I savor every bite of my collection that includes Ferrero Rondnoir, Raffaello and Ferrero Rocher. Sweet!

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Filed under Crohn's Disease, Family, Parenting

What She Found in the Closet

Personality. My daughter has it. In fact, she has so much personality she has little time for things like cleaning her room on her own. Personality people love group activities and let’s face it: cleaning your own room isn’t a group activity. Greta loves to help in groups and will be the first to volunteer and she’s great at cheering on the team. That’s why we love personality people.

But her room is still a mess and the boys don’t wan to make it a group activity that Greta will love and help their little sister out. So we bribe them. Matthew is paid to work in the room for a while. Greta is thrilled to have company on doing a chore and the room gets cleaned. We gloss over the arguments and chalk them up to simple sibling rivalry.

The next morning, Greta came out with a huge smile and one of her recently rediscovered treasures, found deep in the recesses of her previously hideous closet. It was an envelope full of homemade cards from the kids at her school – from when she was in the hospital. She came out waving the envelope and shouting to the world:

See mommy, people do love and care about me.

Of course I responded that I never had any doubt and smiled, and tried not to cry, as Greta read card after homemade card from different schoolmates expressing that she get well soon and how much they loved and missed her. It’s been two years since our lives changed and ADEM came to our home, but those words of love and encouragement still found loving reception in Greta’s heart, and mine.

I told my class at church – I wish everyone could go clean their closet and find an envelope full of the love and encouragement folks have given them when they went through a difficult time – and remember that people still love and care about them. Go ahead, right now. Go clean out the closet of your memories. Don’t dwell on the obstacles and hurts. Remember the love and support of those who stood by you and perhaps even carried you through that time. Like Greta, hold those precious memories high and say to yourself that it’s true! People still love and care about me!

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Filed under ADEM, Community, Family, Parenting

You’re Thankful for WHAT???

Long. Difficult. Discouraging. My Crohn’s journey has been all of this and more. But this week, I actually thanked God for my Crohn’s Disease.

Trust me, I know you’re thinking “what in the world?” right now and I get that. I was too at first. But I’ve been studying and praying a lot about issues in life. I’ve seen how being weak and having to depend on God’s grace has taught me to not be so much thinking that I could do it all myself. That’s my personality. Just tell me I can’t do something and I’ll prove to you that I can!

I came to the realization that the convenience and comforts of this life were far more important to me than I wanted to admit. I was so focused on having a “dream come true” life right here and now that I wasn’t really planning on the eternal life spoken of so much in the Bible.

Do I wish I get could get through a day without pain? You better believe it! No more fatigue, anemia induced hair loss or plaguing side symptoms of Crohn’s Disease? Of course! But I already have that promised to me. There are a lot of other folks out there that don’t have any hope whatsoever. They look at the crazy mixed up world around us and think this is all there is. And that’s a pretty pathetic outlook on life.

So I’m going to quit spending so much time praying for healing and understanding why I have to suffer with Crohn’s and focus instead on the fact that I know of a future without Crohn’s. I know of a future without death, suffering and pain. And it’s about time I shared this hope with others who need to hear it.

Pity party over. Time to spread some good news. This isn’t all there is. You can have more. It’s yours free because of something called amazing grace!

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Filed under Crohn's Disease, Spirituality