Like it or not, once you start messing around with all that amazing stuff inside of your skull, you are going to have some consequences. With our daughter, we are glad the lesions in her brain are no longer growing, that it is the one time ADEM episode, but the fact of the matter is there are still after effects of the lesions in her brain.
Greta is one of the many sufferers of a disease or disorder that no one can easily see on the outside. There are many issues, some chronic, some acute, but all leave a person feeling isolated to some extent. They look “normal” to most, but those who know them best know the more of their daily struggles.
Most kids that suffer from brain injuries/lesions, try so hard to hold it together at school. They let it all out at home, full force. Lucky us. At least Greta gets to experience a mostly normal day at school with friends. At home, however, when her will and our wills clash – it can be a nasty battle. The last one left Karl and I on the wounded list for hours. Greta recovered in a matter of minutes – cheerful as ever.
After debriefing over the latest explosion of anger and emotions from our daughter, we discovered something. She has a short circuit. Perseveration – latching on to something and not letting go – is one of her issues. If you try to change Greta’s mind on something she is latched on to – let the battle begin! What we learned is we try to go to step 1 of reasoning out a solution agreeable to all. Greta immediately launches a nuclear strike and takes no prisoners. She no longer has the ability to follow reasonable conflict resolution patterns in areas where she is experiencing perseveration.
Our task now: figure out how to help Greta develop a new circuit so the battle doesn’t start off immediately with a missile crisis – will she or won’t she? On this journey of ADEM effects, we learn more and more about the amazing brain and how our bodies cope. My prayer is that we learn enough to make a difference in Greta’s post ADEM life and the lives of others that suffer due to brain injuries and illnesses.
Greta had her one year follow up regarding her ADEM. It seems we learn more about this disease each time we see her specialists – actually we learn more about how it is affecting Greta. Her MRI looked great, no new lesions and shrinkage of most of the original ones. There is one spot on her brain that isn’t going away. The doctors said that since it is one year out now, most likely she will have that spot for the rest of her life. This will make things interesting for her. If she ever has an MRI of the brain in the future for any reason besides the ADEM, she’ll have to let them know ahead of time that she has a spot on her brain, from a childhood illness.
We learned that there are four friends that hang out together after brain injury/trauma/lesions. They are perseveration, decreased math skills, memory oddities and being very literal. And yes, Greta is textbook with these issues. She latches on to things and won’t let go, like a honey badger. She’s been taken down a grade level in math and we never know when her memory is going to take a brief hiatus. What about being literal? Don’t even think about using a figure of speech unless you are prepared to spend 10 minutes explaining it to Greta.
The literal issue is probably one of the biggest. Most everyone has run across someone who has no concept of boundaries or sharing/taking turns. So the latching on to things of perseveration won’t hinder her throughout life. Many people hate math. Greta will have many sympathizers. Who knows what is memory and what is not? Half of our lives are spent connected to some sort of electronic device to prompt us of important things anyway. But being very literal – it could lead to all kinds of trouble.
I remember saying something like, “It’s got your name written all over it Greta.” She did indeed look for her name and then got very angry that I had lied to her because obviously her name wasn’t on it. She had no concept of the figure of speech. This is one of many incidents she has gone through. So I will start praying now that there will always be at least one person in the group (Greta loves being with friends) that will help her get past this literal hurdle. For now, it is her family. I pray she finds friends to help her overcome these setbacks in college and eventually the workplace.
Perhaps this is why the Bible tells us to confess our faults to one another. It doesn’t say sins. It says faults. If we open up and share with each other our struggles, the hope is that your friends will pick up the slack where you need it most. But this requires vulnerability. This requires risk. What if I share my struggle with someone and they just laugh at me? What if they use it against me and keep me from getting that promotion I was set for? We can start by being a good example. You probably already know an issue that one of your friends struggles with. Go out of your way to be a true friend and pick up some slack. Be intentional about helping your friends and family. It matters.
So my oldest and I were in a discussion this morning about physics. Part of my personal Bible study time this morning including contemplating where our information comes from about who we are and what our purpose might be in this life. A point was made that if science is our final guide, what do we do when different laws in science are diametrically opposed to each other?
This is where Michael came in. Since he wants to be an engineer and devour physics, I asked him to put it into his own words: what is the conflict between quantum physics and the theory of relativity. His answer: quantum physics is based on the fact that no matter what, all matter stays as it is (basically). Relativity, on the other hand, indicates that the speed at which matter travels can have an impact on time perception (this is for all of you time travelers out there).
After much contemplation, I will still enjoy science and appreciate it for what it is – a study and observation of known things. When it comes to the unknown things, I’m going to stick to the Bible. My reasoning? Many people tried to say that the Bible was wrong and when it says as a man thinks in his heart, it really meant the brain. It is some kind of allegory or something. Well, I tend to think that if it were meant to be a symbol, it would have clearly indicated it was a symbol. Just because something doesn’t make sense, doesn’t mean that you spiritualize it away, especially now that we know better. Oh, you haven’t heard?
Our “science” in the realm of medicine has finally gotten to the point where we can study more and observe that there are actually neurotransmitters surrounding the heart. Neurotransmitters – think brain stuff. So if it took science this long to finally catch up to the Bible in this one point, I’m content to continue to live by faith and wait for it to catch up with the rest as well.