Tag Archives: routines

What Tools Should You Have in Your Toolbox?

If you hang around neuro-psychologists long enough, you just might pick up a couple of their phrases. Going through the evaluations, various testings including follow-up MRI’s and so forth with Greta’s Acute Disseminated Encephalomyelitis (ADEM), we’ve spent some time with a great neuro-psychologist. One of her phrases that we love -Tools for your Toolbox!

Basically, this doctor, who is a favorite among all the kids and parents because she is just so awesome, says her goal is to make sure Greta has enough tools in her toolbox to handle dealing with ADEM in day to day life. Now nearly three years after that terrifying ordeal of seeing my little girl hospitalized and hooked up to all kinds of things, I realize that tools in the toolbox can apply to any of us. I’ve also seen that we’re a lot happier when we embrace this.

I’m getting ready to send my firstborn off to college. He has his own issues that he deals with, like being an intense introvert and being addicted to his routines. Seeing him being forced by circumstances to change his routine is like watching ants that have lost the line. So yeah, I’m a little nervous for him, but I’ve taken on Dr. Harder’s mantra and I’m doing everything I can to make sure that Michael has the tools he needs in his toolbox to deal with life as a college student hundreds of miles from home.

So what tools should you have in your toolbox? That’s easy, the ones that help you cope and deal with life – in addition they should be legal, moral and ethical. That usually helps. While there will be similarities, there will also be tools that will be different for each person. Greta, being very literal now and decreased math skills due to ADEM, needs tools to help her remember to ask people to help her when she doesn’t understand something. She needs to tool of asking others to slow down and help her until she gets that joke, because she’s so literal.

Michael, the extreme introvert, knows he would rather do just about anything before talking on the phone to anyone. So a tool in his toolbox is going to be a good friend willing to make a phone call when he can’t.

What tools should be in your toolbox? Find those things that help you cope with life and deal with the day to day stresses that living on planet Earth serves up on a regular basis. The amazing thing is, you’ll usually find tools for your toolbox in your family, church, community and friends.

 

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Filed under ADEM, Community, Family, Parenting

Jumping Ahead

When you are used to being active and involved in everything, being sidelined is almost a fate worse than death. So you can imagine my anticipation and eagerness after a corrective surgery to get back on my feet and get back in the game. Oops, a little too soon and a little too fast.

The good news is that the evil adhesion mass has been removed and once I fully recover from the surgery, look out world here I come! I’ve longed to do so much that my hunger and thirst for it drove me harder, faster, more – and just a little bit of overdoing it.

There are things I’ve promised myself – no more sitting around and doing nothing! Getting out and doing things again and saying yes to more invitations. But I’ve come to realize that being sidelined has an impact on more than your physical ability. It creates new habits, new routines, new ways of doing things. I’ve already faced a couple of situations where activity was available, but the habit of staying home and drawing into myself reared its ugly head and sometimes won out.

The biggest battle I face now may no longer be physical pain, but the kind of life I accepted while I was in so much pain and whether or not to continue coasting along. God give me strength to no longer find coasting along as acceptable!

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Filed under Community, Healthy Lifestyle